In May 2009, 5-year-old Braeden complained of a back and neck ache. Little did he know that he would soon be only the 12th case in the world of Atypical Ganglioneurocytoma, a rare form of cancer. Barely able to lift his head, his mother Tanya took him to his physician, […]

This is the story of Ezra as told to us by his parents, Ryan & Bobbie: The last thing a parent wants to hear is, “Your child has a rare genetic disease and will struggle with seizures the rest of his life.” However, that is what we were told when […]

Madison was born March 15, 2006 with Hypo Left Heart Syndrome or HLHS. HLHS is a severe heart defect in which the left side of the heart does not develop during pregnancy. Madison will need three heart surgeries or a new heart. The doctors at Children’s Hospital of Milwaukee decide […]

After being born a chubby 8 lb 6 oz baby, landing solidly in the 75th percentile for weight, Annabelle’s growth chart started to quickly take a nose-dive. As her parents, we nervously watched her weight fall to the 26th percentile at two months, the 12th percentile at 4 months, the […]