At just 4 months of age, Peter’s parents noticed a slight droop to one of his eyes. His pediatrician consulted an ophthalmologist who quickly ordered a MRI and lab work. Although Peter was a thrivin…
At 9 months old, it became apparent that something was abnormal about Taylor’s eyes. His family had done countless tests and retests — and the best answer they were given was “it could be…
At 30 weeks into the pregnancy, we learned that there was something very wrong with Isaac’s kidneys. On a late Thursday afternoon, doctors told us that Isaac had severe dilation of his kidneys a…
In May 2009, 5-year-old Braeden complained of a back and neck ache. Little did he know that he would soon be only the 12th case in the world of Atypical Ganglioneurocytoma, a rare form of cancer. Bare…
This is the story of Ezra as told to us by his parents, Ryan & Bobbie: The last thing a parent wants to hear is, “Your child has a rare genetic disease and will struggle with seizures the re…
Madison was born March 15, 2006 with Hypo Left Heart Syndrome or HLHS. HLHS is a severe heart defect in which the left side of the heart does not develop during pregnancy. Madison will need three hear…
After being born a chubby 8 lb 6 oz baby, landing solidly in the 75th percentile for weight, Annabelle’s growth chart started to quickly take a nose-dive. As her parents, we nervously watched her we…